[Last modified: December, 2 2024 11:38 AM]
Case Study on Data Collection by HIV Specialist Midwives
I classify this project as high risk due to the sensitive nature of the context and the hierarchical dynamics between the researcher and the participants. Below, I outline recommendations to ensure ethical compliance and mitigate risks.
Informed Consent and Voluntary Participation
The researcher must ensure that all participants, including midwives and administrative staff, understand the purpose, scope, and potential implications of the study. Given the hierarchical dynamics, there is a risk of participants feeling pressured to participate due to their professional relationship with the researcher. To counteract this, recruitment and consent processes should emphasize voluntariness and include anonymized methods, such as third-party invitations to participate. Consent must be documented but also re-confirmed at multiple stages of the research.
Minimizing Risks of Coercion and Bias
Given that the researcher works closely with the participants and plans to return to the same workplace after the dissertation, safeguards against coercion are essential. Power dynamics may unintentionally influence responses or participation. To address this, data collection should occur outside the hospital setting to create a neutral space, free from professional influence. Furthermore, an external moderator should review the interview questions to avoid leading participants toward certain responses.
Data Sensitivity and Privacy
The project involves medical and social data collected by HIV specialist midwives. These data pertain to a vulnerable population: HIV-positive women and their babies. While the research focuses on midwives’ engagement with data, any indirect reference to patient information must be strictly avoided. Ethical guidelines must ensure no identifiable patient data is included, discussed, or inferred in interviews. The researcher should use pseudonymization techniques to protect participants’ identities.
Avoiding Dual-Use of Data
Given the researcher’s dual role as both a student and a professional within the same institution, a clear boundary must be established between her research and professional responsibilities. No institutional data collected during employment should be used without explicit permission and ethical approval. Furthermore, the interviews must solely focus on the midwives’ experiences and attitudes toward data collection, avoiding any overlap with patient-related data.
Independent Ethical Review and Monitoring
Finally, an independent review board such as UCL REC should monitor the research process to ensure compliance with ethical standards. Regular updates and audits can help maintain transparency and protect both the researcher and participants from potential ethical breaches.
By adhering to these recommendations, the researcher can uphold ethical standards while conducting this high-risk but valuable study.