SensorAble Participant Public Information Studies Now Closed

Thank you
I am pleased to report that both the SensorAble Online Focus Group and Surveys are now completed. Thanks to everyone who provided their incredible participation, guidance and kindness.
SensorAble Online Survey
Your support may lead to the development of theory and research that just might make the world a little less distracting and anxiety-producing for the neurodiverse.
SensorAble Focus Group

Stay tuned to this space as I continue to scrub the data, and provide updates on what the research yields. Baby steps initially, leading to the development of my PhD thesis and hopefully some tangible results that provide autonomy, greater participation and comfort at both school, work and other venues.

Thank you and please stay safe and well during these most unusual times.

SensorAble Online Survey Now Open!

 

For those of you interested in taking part in the first phase of the SensorAble Study…

If you’re ages 15-54 and have been diagnosed with Autism Spectrum Disorder or identify as Autistic, the Focus Group portion of enrollment is now completed. However…

limited number of paid positions in the online Survey are still available by clicking here.

This project is co-produced with other individuals like you in order to understand their/your lived experiences and then create a wearable prototype. The prototype aims to limit and filter unwanted sensory-stimuli and deliver early-warning alerts of distracting and anxiety-producing events.

To join, you will need to confirm that you are:

  • 15-54 years of age and have access to the internet.
  • Able to complete an online survey.

I look forward to hearing from you!


A portion of the SensorAble Focus Group is funded through Facilitation of Participant Public Information (PPI) under the National Institute for Health Research (NIHR) in conjunction with a partnership between UCL, University College London Hospitals Biomedical Research Centre and the NHS Foundation Trust (reference: BRC743/DR/104990). The remainder of the study is not associated with any external organising and/or funding association and is self-funded by the researcher.

NHS Logo UCLH and NHS Foundation Trust.   UCL Logo


MPhil to PhD Upgrade

Nothing marks the first year of doctoral training quite like one’s preparation for The Upgrade. It actually sounds like a made-for-television special or even an independent film. Needless to say, it is more assuredly neither.

From my perspective, it has been business as usual. I have been preparing for upgrade wholeheartedly for no less than six months. Now that I am approaching my twelfth month, an having completed three years of required training last month (in one year no less!), I am fully devoting my energies to all things upgrade.

In actuality, this is not completely true. For the past two weeks, I’ve also been knee-deep in starting my  research from a data collection via multiple online focus groups, transcriptions and starting to tag text within my qualitative software application for analysis. Oh yes, literature searching continues unabated as well.

However, for the purposes of this blog post…I shall pretend that I have only those concerns relating to casting of the MPhil shackles and becoming a full-fledged PhD…all made possible by The Upgrade.

And what of these shackles, anyway? Depending upon whom you speak with, the MPhil process is shroud in much mystique and sine qua non. There are others, considerably more experienced than I who will tell you that “the Upgrade is nothing but a formality, a bunch of tick-boxes put in place to prevent the University and student from failing one another”.

Wait a minute…failure?!?!

“Not to worry!” my informant suggests. “It merely ensures essentials such as your ability to speak English, write appropriately, ascribe to a timetable, and produce research that is not underwhelming in scope or unimaginably impossible to complete. You’ll have no problem…I wouldn’t worry.”

Which, of course, sets worry in to motion.

Being the A+ type multiplied by infinity personality-type that I am (e.g. aggressive, ambitious, controlling, highly competitive, preoccupied with success, workaholic and lack of patience), I begin to sweat even more of the details of something that I have been preparing for…seemingly for…for…forever!.

It was with great desire, then, that I obtain guidance from my supervisors in order to best develop an upgrade roadmap avoiding, at all cost, a road to perdition. So with that, I await feedback regarding my Upgrade Report, so that I may carve out a compelling Google Sheets Presentation.

And yet, I am already aware that there is a good portion of my Upgrade Report (that will appear within said presentation) that will now likely never become actionable.

Why?

Owing to COVID-19, those myriad face-to-face focus groups, surveys, questionnaires and trials of pilot technologies requiring in-person activities must now all be (and some already have been) migrated online. In fact, the overall tenor of the proposed research has taken on less of a prototyping, engineering vantage point. These modifications have occurred in favour of those that are considerably more scientific and proof of concept/research.

In modulating the original plan, the idea now is that a post-doc may result in a more engineering-funded objective leading to prototype development. All of this hinges upon a PhD with substantial research that is compelling  to attract funding and sponsorship. And the road to PhD, at least today, travels through…you guessed it:

The Upgrade!

At least this is what my esteemed supervisors are suggesting. And that which I am completely trusting in as the end-game result. So with keyboard in hand, I await my monthly supervisory meeting taking place in less than one week. I’m hopeful that my Upgrade Report meets with approval, that my presentation may reflect that which is within the report, and that my Upgrade Panel, Upgrade Appointment and all associated departmental paperwork is “in the works”.

Fingers crossed. We shall see within a week’s time.